Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 200 Morris Street, Durham, NC 27705
Phone (919) 668-2148
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee. 

Karen Steinhauser, PhD, is Professor, Departments of Population Health Sciences and Medicine, Duke University Medical Center and Senior Fellow with the Duke University Center for Aging and Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham. Her research is dedicated to improving patient and family psychosocial and spiritual care, in serious illness. She has developed measurement tools to assess patient and family quality of life as well as psychosocial interventions to improve the experience of serious illness for patients and those who care for them. Dr. Steinhauser's research has used qualitative and qualitative methods, observational, trial and implementation research.  Her latest work includes: developing a measure to assess the spiritual needs in palliative care, and addressing clinician resilience in palliative care. She serves as Associate Chief of Research for Duke Palliative Care, Director of the Duke Residency Professional Development Coaching program and Vice Chair of Faculty Development for Population Health Sciences. She has been a long-term member of AAHPM, having served on the research committee and being the 2015 Awardee for Excellence in Scientific Research in Palliative Care. She is the Director of Duke’s Residency Professional Development Coaching Program and Vice Chair for Faculty Development, Department of Population Health Sciences



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Kavalieratos, Dio, Daniel E. Siconolfi, Karen E. Steinhauser, Janet Bull, Robert M. Arnold, Keith M. Swetz, and Arif H. Kamal. “"It Is Like Heart Failure. It Is Chronic … and It Will Kill You": A Qualitative Analysis of Burnout Among Hospice and Palliative Care Clinicians.” J Pain Symptom Manage 53, no. 5 (May 2017): 901-910.e1. https://doi.org/10.1016/j.jpainsymman.2016.12.337.

PMID
28063867
Full Text

Bailey, Donald E., Cristina C. Hendrix, Karen E. Steinhauser, Karen M. Stechuchak, Laura S. Porter, Julie Hudson, Maren K. Olsen, et al. “Randomized trial of an uncertainty self-management telephone intervention for patients awaiting liver transplant.” Patient Educ Couns 100, no. 3 (March 2017): 509–17. https://doi.org/10.1016/j.pec.2016.10.017.

PMID
28277289
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Rogers, J. G., C. B. Patel, R. J. Mentz, K. E. Steinhauser, B. B. Granger, M. Fiuzat, P. A. Adams, et al. “Palliative Care in Heart Failure: Results of a Randomized, Controlled Clinical Trial.” Journal of Cardiac Failure 22, no. 11 (November 2016): 940–940. https://doi.org/10.1016/j.cardfail.2016.09.014.

Full Text

Porter, Laura S., Laura FIsh, Hope Elizabeth Uronis, Yousuf Zafar, and Karen E. Steinhauser. “The elephant in the room: Facilitating conversations about advanced cancer between patients and their spouses.” In Journal of Clinical Oncology, 34:233–233. American Society of Clinical Oncology (ASCO), 2016. https://doi.org/10.1200/jco.2016.34.26_suppl.233.

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Steinhauser, Karen E., Annette Olsen, Kimberly S. Johnson, Linda L. Sanders, Maren Olsen, Natalie Ammarell, and Daniel Grossoehme. “The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study.” Palliat Support Care 14, no. 5 (October 2016): 456–67. https://doi.org/10.1017/S1478951515001248.

PMID
26513022
Full Text

Back, Anthony L., Karen E. Steinhauser, Arif H. Kamal, and Vicki A. Jackson. “Building Resilience for Palliative Care Clinicians: An Approach to Burnout Prevention Based on Individual Skills and Workplace Factors.” J Pain Symptom Manage 52, no. 2 (August 2016): 284–91. https://doi.org/10.1016/j.jpainsymman.2016.02.002.

PMID
26921494
Full Text

Hendrix, Cristina C., Donald E. Bailey, Karen E. Steinhauser, Maren K. Olsen, Karen M. Stechuchak, Sarah G. Lowman, Abby J. Schwartz, et al. “Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being.” Support Care Cancer 24, no. 1 (January 2016): 327–36. https://doi.org/10.1007/s00520-015-2797-3.

PMID
26062925
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Steinhauser, Karen E., Corrine I. Voils, Hayden Bosworth, and James A. Tulsky. “What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital.” Palliat Support Care 13, no. 4 (August 2015): 945–52. https://doi.org/10.1017/S1478951514000807.

PMID
25003541
Full Text

LeBlanc, Thomas William, Catherine T. Bloom, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy Pickar Abernethy. “Acute Myeloid Leukemia (AML) Patients’ Understanding of Prognosis and Treatment Goals: A Mixed-Methods Study.” In Journal of Clinical Oncology, 33:e17741–e17741. American Society of Clinical Oncology (ASCO), 2015. https://doi.org/10.1200/jco.2015.33.15_suppl.e17741.

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LeBlanc, Thomas William, Steven Wolf, Debra M. Davis, Greg Samsa, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy Pickar Abernethy. “Symptom burden, quality of life, and distress in acute myeloid leukemia patients receiving induction chemotherapy: A prospective electronic patient-reported outcomes study.” In Journal of Clinical Oncology, Vol. 33. AMER SOC CLINICAL ONCOLOGY, 2015.

Scholars@Duke

Pages