Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Assistant Research Professor, Department of Medicine; Senior Fellow with the Duke University Center for Aging; Associate Faculty Scholar with the Duke Institute on Care at the End of Life; and Associate Director of the Program on the Medical Encounter and Palliative Care, Duke and VA Medical Centers.

Dr. Steinhauser received her doctoral training in sociology at Duke where she specialized in the study of medical sociology and aging. Her dissertation examined the organizational evolution of hospice care. Particular attention centered on the influence of public funding, via Medicare, on a private sector volunteer organization. Following her graduate training, she completed post-doctoral research in Health Services Research and Development at the Durham VA Medical Center. Her post-doctoral research focused on identifying what patients, families and health care providers value at the end of life. The qualitative and quantitative results of that study served as the foundation in the design of a clinical instrument to assess the quality of dying (the QUAL-E). Dr. Steinhauser is the Principal Investigator of the study to longitudinally validate that instrument. She is also Principal Investigator of a study to develop a twenty-year longitudinal database of hospice care in North Carolina.

Area of expertise: Health Measurement

Education and Training

  • Ph.D., Duke University, 1996

Publications

Lyerly, AD, Steinhauser, K, Voils, C, Namey, E, Alexander, C, Bankowski, B, Cook-Deegan, R, Dodson, WC, Gates, E, Jungheim, ES, McGovern, PG, Myers, ER, Osborn, B, Schlaff, W, Sugarman, J, Tulsky, JA, Walmer, D, Faden, RR, and Wallach, E. "Fertility patients' views about frozen embryo disposition: results of a multi-institutional U.S. survey." Fertil Steril 93, no. 2 (February 2010): 499-509.

PMID
19061998
Full Text

Steinhauser, KE, Alexander, SC, Byock, IR, George, LK, and Tulsky, JA. "Seriously ill patients' discussions of preparation and life completion: an intervention to assist with transition at the end of life." Palliat Support Care 7, no. 4 (December 2009): 393-404.

PMID
19939302
Full Text

Van Houtven, CH, Taylor, DH, Steinhauser, K, and Tulsky, JA. "Is a home-care network necessary to access the Medicare hospice benefit?." J Palliat Med 12, no. 8 (August 2009): 687-694.

PMID
19591625
Full Text

Steinhauser, KE, and Barroso, J. "Using qualitative methods to explore key questions in palliative care." J Palliat Med 12, no. 8 (August 2009): 725-730.

PMID
19663573
Full Text

Steinhauser, KE, Alexander, SC, Byock, IR, George, LK, Olsen, MK, and Tulsky, JA. "Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial." J Palliat Med 11, no. 9 (November 2008): 1234-1240.

PMID
19021487
Full Text

Reynolds, KS, Hanson, LC, DeVellis, RF, Henderson, M, and Steinhauser, KE. "Disparities in pain management between cognitively intact and cognitively impaired nursing home residents." J Pain Symptom Manage 35, no. 4 (April 2008): 388-396.

PMID
18280101
Full Text

Reynolds, KS, Hanson, LC, DeVellis, RF, Henderson, M, and Steinhauser, KE. "Disparities in pain management between cognitively intact and cognitively impaired nursing home residents." JOURNAL OF PAIN AND SYMPTOM MANAGEMENT 35, no. 4 (April 2008): 388-396.

Full Text

Reynolds, KS, Hanson, LC, Henderson, M, and Steinhauser, KE. "End-of-life care in nursing home settings: do race or age matter?." Palliat Support Care 6, no. 1 (March 2008): 21-27.

PMID
18282341
Full Text

Voils, CI, Sandelowski, M, Dahm, P, Blouin, R, Bosworth, HB, Oddone, EZ, and Steinhauser, KE. "Selective adherence to antihypertensive medications as a patient-driven means to preserving sexual potency. (Published online)" Patient Prefer Adherence 2 (February 2, 2008): 201-206.

PMID
19920964
Scholars@Duke

Taylor, DH, Steinhauser, K, Tulsky, JA, Rattliff, J, and Van Houtven, CH. "Characterizing hospice discharge patterns in a nationally representative sample of the elderly, 1993-2000." Am J Hosp Palliat Care 25, no. 1 (February 2008): 9-15.

PMID
18198361
Full Text

Pages