Geoffrey Ginsburg, MD, PhD, professor of medicine (Cardiology) and director of the Center for Applied Genomics and Precision Medicine, will speak at the White House’s Champions of Change for Precision Medicine event today.
"I was asked to give one of five presentations to speak about platforms that engage patients for precision medicine," said Dr. Ginsburg. will announce plans to make the MeTree family medical history software widely available.
Ginsburg is a member of the President's Precision Medicine Initiative.
Highlights from his prepared remarks:
"Several years ago we recognized that family history is fundamental to optimizing effective clinical approaches to personalized and precision medicine. However, our research showed that seldom, if at all, was a patient’s family history captured and adequately documented by providers. Furthermore, when histories were taken, there were challenges in interpreting the risk information embedded in family history."
"Duke is pioneering the use of open, vendor-neutral standards espoused by the Argonaut Project. These standards will be in place by year’s end to enable this platform to be integrated into multiple patient portals and Electronic Health Records. This will allow near universal accessibility of family history information to patients and providers - improving shared decision making related to prevention of inherited disease."
[Update: Dr. Ginsburg speaks at 2:08:30 in the video below.]