Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 200 Morris Street, Durham, NC 27705
Phone (919) 668-2148
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee. 

Karen Steinhauser, PhD, is Professor, Departments of Population Health Sciences and Medicine, Duke University Medical Center and Senior Fellow with the Duke University Center for Aging and Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham. Her research is dedicated to improving patient and family psychosocial and spiritual care, in serious illness. She has developed measurement tools to assess patient and family quality of life as well as psychosocial interventions to improve the experience of serious illness for patients and those who care for them. Dr. Steinhauser's research has used qualitative and qualitative methods, observational, trial and implementation research.  Her latest work includes: developing a measure to assess the spiritual needs in palliative care, and addressing clinician resilience in palliative care. She serves as Associate Chief of Research for Duke Palliative Care, Director of the Duke Residency Professional Development Coaching program and Vice Chair of Faculty Development for Population Health Sciences. She has been a long-term member of AAHPM, having served on the research committee and being the 2015 Awardee for Excellence in Scientific Research in Palliative Care. She is the Director of Duke’s Residency Professional Development Coaching Program and Vice Chair for Faculty Development, Department of Population Health Sciences



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Steinhauser, Karen E., Karen M. Stechuchak, Katherine Ramos, Joseph Winger, James A. Tulsky, and Maren K. Olsen. “Current measures of distress may not account for what's most important in existential care interventions: Results of the outlook trial.” Palliat Support Care 18, no. 6 (December 2020): 648–57. https://doi.org/10.1017/S1478951520001170.

PMID
33148357
Full Text

Kobe, Elizabeth A., David Edelman, Phillip E. Tarkington, Hayden B. Bosworth, Matthew L. Maciejewski, Karen Steinhauser, Amy S. Jeffreys, et al. “Practical telehealth to improve control and engagement for patients with clinic-refractory diabetes mellitus (PRACTICE-DM): Protocol and baseline data for a randomized trial.” Contemp Clin Trials 98 (November 2020): 106157. https://doi.org/10.1016/j.cct.2020.106157.

PMID
32971277
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Bakitas, Marie A., J Nicholas Dionne-Odom, Deborah B. Ejem, Rachel Wells, Andres Azuero, Macy L. Stockdill, Konda Keebler, et al. “Effect of an Early Palliative Care Telehealth Intervention vs Usual Care on Patients With Heart Failure: The ENABLE CHF-PC Randomized Clinical Trial.” Jama Intern Med 180, no. 9 (September 1, 2020): 1203–13. https://doi.org/10.1001/jamainternmed.2020.2861.

PMID
32730613
Full Text

Winger, Joseph G., Katherine Ramos, Karen E. Steinhauser, Tamara J. Somers, Laura S. Porter, Arif H. Kamal, William S. Breitbart, and Francis J. Keefe. “Enhancing meaning in the face of advanced cancer and pain: Qualitative evaluation of a meaning-centered psychosocial pain management intervention.” Palliat Support Care 18, no. 3 (June 2020): 263–70. https://doi.org/10.1017/S1478951520000115.

PMID
32115006
Full Text

Bruening, Rebecca, Nina Sperber, Katherine Miller, Sara Andrews, Karen Steinhauser, G Darryl Wieland, Jennifer Lindquist, et al. “Connecting Caregivers to Support: Lessons Learned From the VA Caregiver Support Program.” J Appl Gerontol 39, no. 4 (April 2020): 368–76. https://doi.org/10.1177/0733464818825050.

PMID
30658547
Full Text

Olsen, Maren K., Karen M. Stechuchak, and Karen E. Steinhauser. “Comparing internal and external validation in the discovery of qualitative treatment-subgroup effects using two small clinical trials.” Contemp Clin Trials Commun 15 (September 2019): 100372. https://doi.org/10.1016/j.conctc.2019.100372.

PMID
31193216
Full Text

Ejem, Deborah B., Nadine Barrett, Ramona L. Rhodes, Maren Olsen, Marie Bakitas, Raegan Durant, Ronit Elk, et al. “Reducing Disparities in the Quality of Palliative Care for Older African Americans through Improved Advance Care Planning: Study Design and Protocol.” J Palliat Med 22, no. S1 (September 2019): 90–100. https://doi.org/10.1089/jpm.2019.0146.

PMID
31486728
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Warraich, Haider J., Christopher M. O’Connor, Hongqiu Yang, Bradi B. Granger, Kimberly S. Johnson, Daniel B. Mark, Kevin J. Anstrom, et al. “African Americans With Advanced Heart Failure Are More Likely to Die in a Health Care Facility Than at Home or in Hospice: An Analysis From the PAL-HF Trial.” J Card Fail 25, no. 8 (August 2019): 693–94. https://doi.org/10.1016/j.cardfail.2019.05.013.

PMID
31158470
Full Text

LeBlanc, Thomas William, Susan C. Locke, Kris Herring, Debra M. Davis, Jesse D. Troy, Karen E. Steinhauser, Kathryn I. Pollak, and Peter A. Ubel. “A video decision aid to improve acute myeloid leukemia patients' illness understanding: Results of a pilot trial.” In Journal of Clinical Oncology, Vol. 37. AMER SOC CLINICAL ONCOLOGY, 2019.

Scholars@Duke

Hemming, Patrick, Jessica A. Revels, Anh N. Tran, Lawrence H. Greenblatt, and Karen E. Steinhauser. “Identifying core curricular components for behavioral health training in internal medicine residency: Qualitative interviews with residents, faculty, and behavioral health clinicians.” Int J Psychiatry Med 54, no. 3 (May 2019): 188–202. https://doi.org/10.1177/0091217418802159.

PMID
30269631
Full Text

Pages