Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Associate Research Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee.  She has conducted cross-sectional and longitudinal observational and interventional, and qualitative and quantitative studies in pursuit of improve understanding of factors that influence quality of life and how they may be addressed in care.  For example, Dr. Steinhauser was Project Director and Co- Investigator of an NIH five-year study, “Trajectories of Serious Illness: Patients and Caregivers,” Principal Investigator of studies to develop measures of quality of life for patients (the QUAL-E ) and families (the QUAL-E fam) in palliative care settings and Principal Investigator of a VA and NIH randomized controlled trials examining the impact of a psychosocial intervention symptoms and quality of life in patients with advanced life limiting illness among (called OUTLOOK).  She is Principal Investigator of an RCT of a caregiver version of the intervention, called Caregiver Outlook, for families of veterans with life-limiting illness.  She piloted tested a chaplains-delivered version of Caregiver Outlook to families of those with cancer and ALS. She conducts work with the VA Mental Health and Chaplaincy program focused on veteran spirituality and health and recently co-led a state of the science conference on spirituality and palliative care research.  Dr. Steinhauser is a member of the scientific review committee for the National Center for Palliative Care Research.  She is the recipient of the American Association of Hospice and Palliative Medicine’s 2015 Award for Scientific Excellence. She is the Director of Duke’s Residency Professional Development Coaching Program and Associate Director of Research for Palliative Care.



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Steinhauser, KE, Voils, CI, Bosworth, HB, and Tulsky, JA. "Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam)." Journal of pain and symptom management 48, no. 6 (December 2014): 1168-1181.

PMID
24858740
Full Text

Mentz, RJ, Tulsky, JA, Granger, BB, Anstrom, KJ, Adams, PA, Dodson, GC, Fiuzat, M, Johnson, KS, Patel, CB, Steinhauser, KE, Taylor, DH, O'Connor, CM, and Rogers, JG. "The palliative care in heart failure trial: rationale and design." American Heart Journal 168, no. 5 (November 2014): 645-651.e1.

PMID
25440791
Full Text

Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart & lung : the journal of critical care 43, no. 5 (September 2014): 406-415.

PMID
24655938
Full Text

Sautter, JM, Tulsky, JA, Johnson, KS, Olsen, MK, Burton-Chase, AM, Lindquist, JH, Zimmerman, S, and Steinhauser, KE. "Caregiver experience during advanced chronic illness and last year of life." Journal of the American Geriatrics Society 62, no. 6 (June 2014): 1082-1090.

PMID
24803020
Full Text

Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart and Lung: Journal of Acute and Critical Care 43, no. 5 (January 1, 2014): 406-415.

Full Text

Mentz, RJ, Tulsky, JA, Granger, BB, Anstrom, KJ, Adams, PA, Dodson, GC, Fiuzat, M, Johnson, KS, Patel, CB, Steinhauser, KE, Taylor, DH, O'Connor, CM, and Rogers, JG. "The palliative care in heart failure trial: Rationale and design." American Heart Journal 168, no. 5 (January 1, 2014): 645-651.e1.

Full Text

Steinhauser, KE, Voils, CI, Bosworth, HB, and Tulsky, JA. "Validation of a measure of family experience of patients with serious illness: The QUAL-E (fam)." Journal of Pain and Symptom Management 48, no. 6 (January 1, 2014): 1168-1181.

Full Text

Sperber, NR, King, HA, Steinhauser, K, Ammarell, N, Danus, S, and Powers, BJ. "Scheduled telephone visits in the veterans health administration patient-centered medical home." Bmc Health Services Research 14 (January 2014): 145-null.

PMID
24690086
Full Text

Balboni, TA, Balboni, M, Enzinger, AC, Gallivan, K, Paulk, ME, Wright, A, Steinhauser, K, VanderWeele, TJ, and Prigerson, HG. "Provision of spiritual support to patients with advanced cancer by religious communities and associations with medical care at the end of life." Jama Internal Medicine 173, no. 12 (June 2013): 1109-1117.

PMID
23649656
Full Text

Keall, RM, Butow, PN, Steinhauser, KE, and Clayton, JM. "Nurse-facilitated preparation and life completion interventions are acceptable and feasible in the Australian palliative care setting: results from a phase 2 trial." Cancer Nursing 36, no. 3 (May 2013): E39-E46.

PMID
23047796
Full Text

Pages