Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 200 Morris Street, Durham, NC 27705
Phone (919) 668-2148
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee. 

Karen Steinhauser, PhD, is Professor, Departments of Population Health Sciences and Medicine, Duke University Medical Center and Senior Fellow with the Duke University Center for Aging and Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham. Her research is dedicated to improving patient and family psychosocial and spiritual care, in serious illness. She has developed measurement tools to assess patient and family quality of life as well as psychosocial interventions to improve the experience of serious illness for patients and those who care for them. Dr. Steinhauser's research has used qualitative and qualitative methods, observational, trial and implementation research.  Her latest work includes: developing a measure to assess the spiritual needs in palliative care, and addressing clinician resilience in palliative care. She serves as Associate Chief of Research for Duke Palliative Care, Director of the Duke Residency Professional Development Coaching program and Vice Chair of Faculty Development for Population Health Sciences. She has been a long-term member of AAHPM, having served on the research committee and being the 2015 Awardee for Excellence in Scientific Research in Palliative Care. She is the Director of Duke’s Residency Professional Development Coaching Program and Vice Chair for Faculty Development, Department of Population Health Sciences



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Steinhauser, Karen E., Annette Olsen, Kimberly S. Johnson, Linda L. Sanders, Maren Olsen, Natalie Ammarell, and Daniel Grossoehme. “The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study.” Palliat Support Care 14, no. 5 (October 2016): 456–67. https://doi.org/10.1017/S1478951515001248.

PMID
26513022
Full Text

Back, Anthony L., Karen E. Steinhauser, Arif H. Kamal, and Vicki A. Jackson. “Building Resilience for Palliative Care Clinicians: An Approach to Burnout Prevention Based on Individual Skills and Workplace Factors.” J Pain Symptom Manage 52, no. 2 (August 2016): 284–91. https://doi.org/10.1016/j.jpainsymman.2016.02.002.

PMID
26921494
Full Text

Hendrix, Cristina C., Donald E. Bailey, Karen E. Steinhauser, Maren K. Olsen, Karen M. Stechuchak, Sarah G. Lowman, Abby J. Schwartz, et al. “Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being.” Support Care Cancer 24, no. 1 (January 2016): 327–36. https://doi.org/10.1007/s00520-015-2797-3.

PMID
26062925
Full Text

Steinhauser, Karen E., Corrine I. Voils, Hayden Bosworth, and James A. Tulsky. “What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital.” Palliat Support Care 13, no. 4 (August 2015): 945–52. https://doi.org/10.1017/S1478951514000807.

PMID
25003541
Full Text

Powell, Richard A., Linda Emanuel, George Handzo, John Lantos, Laura B. Dunn, Ellen L. Idler, Diane J. Wilkie, et al. “Transcending differences to study the transcendent: an exploratory study of researchers' and chaplains' reflections on interdisciplinary spiritual care research collaboration.” Bmc Palliat Care 14 (April 18, 2015): 12. https://doi.org/10.1186/s12904-015-0004-4.

PMID
25927207
Full Text

LeBlanc, Thomas W., Catherine T. Bloom, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy P. Abernethy. “Prognostic Disclosure in Acute Myeloid Leukemia (AML): A Qualitative Study of Patient Preferences and Physician Practices.” Blood 124, no. 21 (December 6, 2014).

Scholars@Duke

Steinhauser, Karen E., Corrine I. Voils, Hayden B. Bosworth, and James A. Tulsky. “Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam).” J Pain Symptom Manage 48, no. 6 (December 2014): 1168–81. https://doi.org/10.1016/j.jpainsymman.2014.04.006.

PMID
24858740
Full Text

Mentz, Robert J., James A. Tulsky, Bradi B. Granger, Kevin J. Anstrom, Patricia A. Adams, Gwen C. Dodson, Mona Fiuzat, et al. “The palliative care in heart failure trial: rationale and design.” Am Heart J 168, no. 5 (November 2014): 645-651.e1. https://doi.org/10.1016/j.ahj.2014.07.018.

PMID
25440791
Full Text

Adams, Judith A., Ruth A. Anderson, Sharron L. Docherty, James A. Tulsky, Karen E. Steinhauser, and Donald E. Bailey. “Nursing strategies to support family members of ICU patients at high risk of dying.” Heart Lung 43, no. 5 (September 2014): 406–15. https://doi.org/10.1016/j.hrtlng.2014.02.001.

PMID
24655938
Full Text

Sautter, Jessica M., James A. Tulsky, Kimberly S. Johnson, Maren K. Olsen, Allison M. Burton-Chase, Jennifer Hoff Lindquist, Sheryl Zimmerman, and Karen E. Steinhauser. “Caregiver experience during advanced chronic illness and last year of life.” J Am Geriatr Soc 62, no. 6 (June 2014): 1082–90. https://doi.org/10.1111/jgs.12841.

PMID
24803020
Full Text

Pages