Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Associate Research Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee.  She has conducted cross-sectional and longitudinal observational and interventional, and qualitative and quantitative studies in pursuit of improve understanding of factors that influence quality of life and how they may be addressed in care.  For example, Dr. Steinhauser was Project Director and Co- Investigator of an NIH five-year study, “Trajectories of Serious Illness: Patients and Caregivers,” Principal Investigator of studies to develop measures of quality of life for patients (the QUAL-E ) and families (the QUAL-E fam) in palliative care settings and Principal Investigator of a VA and NIH randomized controlled trials examining the impact of a psychosocial intervention symptoms and quality of life in patients with advanced life limiting illness among (called OUTLOOK).  She is Principal Investigator of an RCT of a caregiver version of the intervention, called Caregiver Outlook, for families of veterans with life-limiting illness.  She piloted tested a chaplains-delivered version of Caregiver Outlook to families of those with cancer and ALS. She conducts work with the VA Mental Health and Chaplaincy program focused on veteran spirituality and health and recently co-led a state of the science conference on spirituality and palliative care research.  Dr. Steinhauser is a member of the scientific review committee for the National Center for Palliative Care Research.  She is the recipient of the American Association of Hospice and Palliative Medicine’s 2015 Award for Scientific Excellence. She is the Director of Duke’s Residency Professional Development Coaching Program and Associate Director of Research for Palliative Care.



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Back, Anthony L., Karen E. Steinhauser, Arif H. Kamal, and Vicki A. Jackson. “Building Resilience for Palliative Care Clinicians: An Approach to Burnout Prevention Based on Individual Skills and Workplace Factors..” J Pain Symptom Manage 52, no. 2 (August 2016): 284–91. https://doi.org/10.1016/j.jpainsymman.2016.02.002.

PMID
26921494
Full Text

Hendrix, Cristina C., Donald E. Bailey, Karen E. Steinhauser, Maren K. Olsen, Karen M. Stechuchak, Sarah G. Lowman, Abby J. Schwartz, et al. “Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being..” Support Care Cancer 24, no. 1 (January 2016): 327–36. https://doi.org/10.1007/s00520-015-2797-3.

PMID
26062925
Full Text

Steinhauser, Karen E., Corrine I. Voils, Hayden Bosworth, and James A. Tulsky. “What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital..” Palliat Support Care 13, no. 4 (August 2015): 945–52. https://doi.org/10.1017/S1478951514000807.

PMID
25003541
Full Text

Powell, Richard A., Linda Emanuel, George Handzo, John Lantos, Laura B. Dunn, Ellen L. Idler, Diane J. Wilkie, et al. “Transcending differences to study the transcendent: an exploratory study of researchers' and chaplains' reflections on interdisciplinary spiritual care research collaboration..” Bmc Palliat Care 14 (April 18, 2015). https://doi.org/10.1186/s12904-015-0004-4.

PMID
25927207
Full Text

LeBlanc, Thomas W., Catherine T. Bloom, Debra M. Davis, Susan C. Locke, Karen E. Steinhauser, Peter A. Ubel, James A. Tulsky, and Amy P. Abernethy. “Prognostic Disclosure in Acute Myeloid Leukemia (AML): A Qualitative Study of Patient Preferences and Physician Practices.” Blood 124, no. 21 (December 6, 2014).

Scholars@Duke

Steinhauser, Karen E., Corrine I. Voils, Hayden B. Bosworth, and James A. Tulsky. “Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam)..” J Pain Symptom Manage 48, no. 6 (December 2014): 1168–81. https://doi.org/10.1016/j.jpainsymman.2014.04.006.

PMID
24858740
Full Text

Mentz, Robert J., James A. Tulsky, Bradi B. Granger, Kevin J. Anstrom, Patricia A. Adams, Gwen C. Dodson, Mona Fiuzat, et al. “The palliative care in heart failure trial: rationale and design..” Am Heart J 168, no. 5 (November 2014): 645-651.e1. https://doi.org/10.1016/j.ahj.2014.07.018.

PMID
25440791
Full Text

Adams, Judith A., Ruth A. Anderson, Sharron L. Docherty, James A. Tulsky, Karen E. Steinhauser, and Donald E. Bailey. “Nursing strategies to support family members of ICU patients at high risk of dying..” Heart Lung 43, no. 5 (September 2014): 406–15. https://doi.org/10.1016/j.hrtlng.2014.02.001.

PMID
24655938
Full Text

Sautter, Jessica M., James A. Tulsky, Kimberly S. Johnson, Maren K. Olsen, Allison M. Burton-Chase, Jennifer Hoff Lindquist, Sheryl Zimmerman, and Karen E. Steinhauser. “Caregiver experience during advanced chronic illness and last year of life..” J Am Geriatr Soc 62, no. 6 (June 2014): 1082–90. https://doi.org/10.1111/jgs.12841.

PMID
24803020
Full Text

Sperber, Nina R., Heather A. King, Karen Steinhauser, Natalie Ammarell, Susanne Danus, and Benjamin J. Powers. “Scheduled telephone visits in the veterans health administration patient-centered medical home..” Bmc Health Serv Res 14 (April 1, 2014). https://doi.org/10.1186/1472-6963-14-145.

PMID
24690086
Full Text

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