Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Associate Research Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee.  She has conducted cross-sectional and longitudinal observational and interventional, and qualitative and quantitative studies in pursuit of improve understanding of factors that influence quality of life and how they may be addressed in care.  For example, Dr. Steinhauser was Project Director and Co- Investigator of an NIH five-year study, “Trajectories of Serious Illness: Patients and Caregivers,” Principal Investigator of studies to develop measures of quality of life for patients (the QUAL-E ) and families (the QUAL-E fam) in palliative care settings and Principal Investigator of a VA and NIH randomized controlled trials examining the impact of a psychosocial intervention symptoms and quality of life in patients with advanced life limiting illness among (called OUTLOOK).  She is Principal Investigator of an RCT of a caregiver version of the intervention, called Caregiver Outlook, for families of veterans with life-limiting illness.  She piloted tested a chaplains-delivered version of Caregiver Outlook to families of those with cancer and ALS. She conducts work with the VA Mental Health and Chaplaincy program focused on veteran spirituality and health and recently co-led a state of the science conference on spirituality and palliative care research.  Dr. Steinhauser is a member of the scientific review committee for the National Center for Palliative Care Research.  She is the recipient of the American Association of Hospice and Palliative Medicine’s 2015 Award for Scientific Excellence. She is the Director of Duke’s Residency Professional Development Coaching Program and Associate Director of Research for Palliative Care.



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Balboni, Tracy A., Michael Balboni, Andrea C. Enzinger, Kathleen Gallivan, M Elizabeth Paulk, Alexi Wright, Karen Steinhauser, Tyler J. VanderWeele, and Holly G. Prigerson. “Provision of spiritual support to patients with advanced cancer by religious communities and associations with medical care at the end of life..” Jama Intern Med 173, no. 12 (June 24, 2013): 1109–17. https://doi.org/10.1001/jamainternmed.2013.903.

PMID
23649656
Full Text

Keall, Robyn M., Phyllis N. Butow, Karen E. Steinhauser, and Josephine M. Clayton. “Nurse-facilitated preparation and life completion interventions are acceptable and feasible in the Australian palliative care setting: results from a phase 2 trial..” Cancer Nurs 36, no. 3 (May 2013): E39–46. https://doi.org/10.1097/NCC.0b013e3182664c7a.

PMID
23047796
Full Text

Chiarchiaro, Jared, Maren K. Olsen, Karen E. Steinhauser, and James A. Tulsky. “Admission to the intensive care unit and well-being in patients with advanced chronic illness..” Am J Crit Care 22, no. 3 (May 2013): 223–31. https://doi.org/10.4037/ajcc2013346.

PMID
23635931
Full Text

Morris, Deborah A., Kimberly S. Johnson, Natalie Ammarell, Robert M. Arnold, James A. Tulsky, and Karen E. Steinhauser. “What is your understanding of your illness? A communication tool to explore patients' perspectives of living with advanced illness..” J Gen Intern Med 27, no. 11 (November 2012): 1460–66. https://doi.org/10.1007/s11606-012-2109-2.

PMID
22638605
Full Text

Burton, Allison M., Jessica M. Sautter, James A. Tulsky, Jennifer Hoff Lindquist, Judith C. Hays, Maren K. Olsen, Sheryl I. Zimmerman, and Karen E. Steinhauser. “Burden and well-being among a diverse sample of cancer, congestive heart failure, and chronic obstructive pulmonary disease caregivers..” J Pain Symptom Manage 44, no. 3 (September 2012): 410–20. https://doi.org/10.1016/j.jpainsymman.2011.09.018.

PMID
22727950
Full Text

Schell, Jane O., Uptal D. Patel, Karen E. Steinhauser, Natalie Ammarell, and James A. Tulsky. “Discussions of the kidney disease trajectory by elderly patients and nephrologists: a qualitative study..” Am J Kidney Dis 59, no. 4 (April 2012): 495–503. https://doi.org/10.1053/j.ajkd.2011.11.023.

PMID
22221483
Full Text

Galanos, Anthony Nicholas, Deborah A. Morris, Carl F. Pieper, Angela M. Poppe-Ries, and Karen E. Steinhauser. “End-of-life care at an academic medical center: are attending physicians, house staff, nurses, and bereaved family members equally satisfied? Implications for palliative care..” Am J Hosp Palliat Care 29, no. 1 (February 2012): 47–52. https://doi.org/10.1177/1049909111407176.

PMID
21546403
Full Text

Hendrix, Cristina C., S Nicole Hastings, Courtney Van Houtven, Karen Steinhauser, Jennifer Chapman, Terry Ervin, Linda Sanders, and Morris Weinberger. “Pilot study: individualized training for caregivers of hospitalized older veterans..” Nurs Res 60, no. 6 (November 2011): 436–41. https://doi.org/10.1097/NNR.0b013e31823583c7.

PMID
22067595
Full Text

Whitson, Heather E., Karen Steinhauser, Natalie Ammarell, Diane Whitaker, Scott W. Cousins, Deidra Ansah, Linda L. Sanders, and Harvey J. Cohen. “Categorizing the effect of comorbidity: a qualitative study of individuals' experiences in a low-vision rehabilitation program..” J Am Geriatr Soc 59, no. 10 (October 2011): 1802–9. https://doi.org/10.1111/j.1532-5415.2011.03602.x.

PMID
22091493
Full Text

Steinhauser, Karen E., Robert M. Arnold, Maren K. Olsen, Jennifer Lindquist, Judith Hays, Laura L. Wood, Allison M. Burton, and James A. Tulsky. “Comparing three life-limiting diseases: does diagnosis matter or is sick, sick?.” J Pain Symptom Manage 42, no. 3 (September 2011): 331–41. https://doi.org/10.1016/j.jpainsymman.2010.11.006.

PMID
21276704
Full Text

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