Karen E. Steinhauser, PhD

Associate Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham, Assistant Research Professor, Department of Medicine, Senior Fellow with the Duke University Center for Aging, Associate Faculty Scholar with the Duke Institute on Care at the End of Life, and Associate Director of the Program on the Medical Encounter and Palliative Care, Duke and VA Medical Centers. Dr. Steinhauser received her doctoral training in sociology at Duke where she specialized in the study of medical sociology and aging. Her dissertation examined the organizational evolution of hospice care. Particular attention centered on the influence of public funding, via Medicare, on a private sector volunteer organization. Following her graduate training, she completed post-doctoral research in Health Services Research and Development at the Durham VA Medical Center. Her post-doctoral research focused on identifying what patients, families and health care providers value at the end of life. The qualitative and quantitative results of that study served as the foundation in the design of a clinical instrument to assess the quality of dying (the QUAL-E). Dr. Steinhauser is the Principal Investigator of the study to longitudinally validate that instrument. She is also Principal Investigator of a study to develop a twenty-year longitudinal database of hospice care in North Carolina.

Education and Training

  • Ph.D., Duke University, 1996

Publications

Hendrix, CC, Bailey, DE, Steinhauser, KE, Olsen, MK, Stechuchak, KM, Lowman, SG, Schwartz, AJ, Riedel, RF, Keefe, FJ, Porter, LS, and Tulsky, JA. "Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being." Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 24, no. 1 (January 2016): 327-336.

PMID
26062925
Scholars@Duke

Powell, RA, Emanuel, L, Handzo, G, Lantos, J, Dunn, LB, Idler, EL, Wilkie, DJ, Massey, K, Summerfelt, WT, Barnes, MJD, Quest, TE, Kestenbaum, A, Steinhauser, K, Fitchett, G, Zollfrank, A, Olsen, AK, Balboni, TA, and Sommer, D. "Transcending differences to study the transcendent: an exploratory study of researchers’ and chaplains’ reflections on interdisciplinary spiritual care research collaboration." BMC Palliative Care 14, no. 1 (December 2015).

Full Text

Steinhauser, KE, Olsen, A, Johnson, KS, Sanders, LL, Olsen, M, Ammarell, N, and Grossoehme, D. "The feasibility and acceptability of a chaplain-led intervention for caregivers of seriously ill patients: A Caregiver Outlook pilot study." Palliative & supportive care (October 29, 2015): 1-12.

PMID
26513022
Scholars@Duke

Steinhauser, KE, Voils, CI, Bosworth, H, and Tulsky, JA. "What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital." Palliative & supportive care 13, no. 4 (August 2015): 945-952.

PMID
25003541
Scholars@Duke

LeBlanc, TW, Bloom, CT, Davis, DM, Locke, SC, Steinhauser, KE, Ubel, PA, Tulsky, JA, and Abernethy, AP. "Prognostic Disclosure in Acute Myeloid Leukemia (AML): A Qualitative Study of Patient Preferences and Physician Practices." BLOOD 124, no. 21 (December 6, 2014).

Scholars@Duke

Steinhauser, KE, Voils, CI, Bosworth, HB, and Tulsky, JA. "Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam)." Journal of pain and symptom management 48, no. 6 (December 2014): 1168-1181.

PMID
24858740
Scholars@Duke

Mentz, RJ, Tulsky, JA, Granger, BB, Anstrom, KJ, Adams, PA, Dodson, GC, Fiuzat, M, Johnson, KS, Patel, CB, Steinhauser, KE, Taylor, DH, O'Connor, CM, and Rogers, JG. "The palliative care in heart failure trial: rationale and design." American heart journal 168, no. 5 (November 2014): 645-651.e1.

PMID
25440791
Scholars@Duke

Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart & lung : the journal of critical care 43, no. 5 (September 2014): 406-415.

PMID
24655938
Scholars@Duke

Sautter, JM, Tulsky, JA, Johnson, KS, Olsen, MK, Burton-Chase, AM, Lindquist, JH, Zimmerman, S, and Steinhauser, KE. "Caregiver experience during advanced chronic illness and last year of life." Journal of the American Geriatrics Society 62, no. 6 (June 2014): 1082-1090.

PMID
24803020
Scholars@Duke

Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart and Lung: Journal of Acute and Critical Care 43, no. 5 (January 1, 2014): 406-415.

Full Text

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