Karen E. Steinhauser, PhD

Associate Professor in Medicine
Member of Duke Cancer Institute
Campus mail 152 Va Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham, Assistant Research Professor, Department of Medicine, Senior Fellow with the Duke University Center for Aging, Associate Faculty Scholar with the Duke Institute on Care at the End of Life, and Associate Director of the Program on the Medical Encounter and Palliative Care, Duke and VA Medical Centers. Dr. Steinhauser received her doctoral training in sociology at Duke where she specialized in the study of medical sociology and aging. Her dissertation examined the organizational evolution of hospice care. Particular attention centered on the influence of public funding, via Medicare, on a private sector volunteer organization. Following her graduate training, she completed post-doctoral research in Health Services Research and Development at the Durham VA Medical Center. Her post-doctoral research focused on identifying what patients, families and health care providers value at the end of life. The qualitative and quantitative results of that study served as the foundation in the design of a clinical instrument to assess the quality of dying (the QUAL-E). Dr. Steinhauser is the Principal Investigator of the study to longitudinally validate that instrument. She is also Principal Investigator of a study to develop a twenty-year longitudinal database of hospice care in North Carolina.

Education and Training

  • Ph.D., Duke University, 1996

Publications

Steinhauser, KE, Voils, CI, Bosworth, H, and Tulsky, JA. "What constitutes quality of family experience at the end of life? Perspectives from family members of patients who died in the hospital." Palliative & supportive care 13, no. 4 (August 2015): 945-952.

PMID
25003541
Full Text

Steinhauser, KE, Voils, CI, Bosworth, HB, and Tulsky, JA. "Validation of a measure of family experience of patients with serious illness: the QUAL-E (Fam)." Journal of pain and symptom management 48, no. 6 (December 2014): 1168-1181.

PMID
24858740
Full Text

Mentz, RJ, Tulsky, JA, Granger, BB, Anstrom, KJ, Adams, PA, Dodson, GC, Fiuzat, M, Johnson, KS, Patel, CB, Steinhauser, KE, Taylor, DH, O'Connor, CM, and Rogers, JG. "The palliative care in heart failure trial: Rationale and design." American Heart Journal 168, no. 5 (November 1, 2014): 645-651.e1.

Full Text

Mentz, RJ, Tulsky, JA, Granger, BB, Anstrom, KJ, Adams, PA, Dodson, GC, Fiuzat, M, Johnson, KS, Patel, CB, Steinhauser, KE, Taylor, DH, O'Connor, CM, and Rogers, JG. "The palliative care in heart failure trial: rationale and design." American heart journal 168, no. 5 (November 2014): 645-651.e1.

PMID
25440791
Full Text

Sautter, JM, Tulsky, JA, Johnson, KS, Olsen, MK, Burton-Chase, AM, Lindquist, JH, Zimmerman, S, and Steinhauser, KE. "Caregiver experience during advanced chronic illness and last year of life." Journal of the American Geriatrics Society 62, no. 6 (June 2014): 1082-1090.

PMID
24803020
Full Text

Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart & lung : the journal of critical care 43, no. 5 (2014): 406-415.

PMID
24655938
Full Text

Adams, JA, Anderson, RA, Docherty, SL, Tulsky, JA, Steinhauser, KE, and Bailey, DE. "Nursing strategies to support family members of ICU patients at high risk of dying." Heart and Lung: Journal of Acute and Critical Care 43, no. 5 (2014): 406-415.

Full Text

Sperber, NR, King, HA, Steinhauser, K, Ammarell, N, Danus, S, and Powers, BJ. "Scheduled telephone visits in the veterans health administration patient-centered medical home." BMC health services research 14 (2014): 145-.

PMID
24690086
Full Text

Chiarchiaro, J, Olsen, MK, Steinhauser, KE, and Tulsky, JA. "Admission to the intensive care unit and well-being in patients with advanced chronic illness." Am J Crit Care 22, no. 3 (May 2013): 223-231.

PMID
23635931
Full Text

Keall, RM, Butow, PN, Steinhauser, KE, and Clayton, JM. "Nurse-facilitated preparation and life completion interventions are acceptable and feasible in the Australian palliative care setting: results from a phase 2 trial." Cancer Nurs 36, no. 3 (May 2013): E39-E46.

PMID
23047796
Full Text

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