Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Assistant Research Professor, Department of Medicine; Senior Fellow with the Duke University Center for Aging; Associate Faculty Scholar with the Duke Institute on Care at the End of Life; and Associate Director of the Program on the Medical Encounter and Palliative Care, Duke and VA Medical Centers.

Dr. Steinhauser received her doctoral training in sociology at Duke where she specialized in the study of medical sociology and aging. Her dissertation examined the organizational evolution of hospice care. Particular attention centered on the influence of public funding, via Medicare, on a private sector volunteer organization. Following her graduate training, she completed post-doctoral research in Health Services Research and Development at the Durham VA Medical Center. Her post-doctoral research focused on identifying what patients, families and health care providers value at the end of life. The qualitative and quantitative results of that study served as the foundation in the design of a clinical instrument to assess the quality of dying (the QUAL-E). Dr. Steinhauser is the Principal Investigator of the study to longitudinally validate that instrument. She is also Principal Investigator of a study to develop a twenty-year longitudinal database of hospice care in North Carolina.

Area of expertise: Health Measurement

Education and Training

  • Ph.D., Duke University, 1996

Publications

LeBlanc, TW, Bloom, N, Wolf, SP, Lowman, SG, Pollak, KI, Steinhauser, KE, Ariely, D, and Tulsky, JA. "Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists." Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 26, no. 4 (April 2018): 1197-1205.

PMID
29101469
Full Text

LeBlanc, TW, Fish, LJ, Bloom, CT, El-Jawahri, A, Davis, DM, Locke, SC, Steinhauser, KE, and Pollak, KI. "Patient experiences of acute myeloid leukemia: A qualitative study about diagnosis, illness understanding, and treatment decision-making." December 2017.

PMID
27862591
Full Text

Steinhauser, KE, Alexander, S, Olsen, MK, Stechuchak, KM, Zervakis, J, Ammarell, N, Byock, I, and Tulsky, JA. "Addressing Patient Emotional and Existential Needs During Serious Illness: Results of the Outlook Randomized Controlled Trial." Journal of pain and symptom management 54, no. 6 (December 2017): 898-908.

PMID
28803082
Full Text

Bakitas, M, Dionne-Odom, JN, Pamboukian, SV, Tallaj, J, Kvale, E, Swetz, KM, Frost, J, Wells, R, Azuero, A, Keebler, K, Akyar, I, Ejem, D, Steinhauser, K, Smith, T, Durant, R, and Kono, AT. "Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial." BMC Palliative Care 16, no. 1 (December 2017).

Full Text

Prescott, AT, Hull, JG, Dionne-Odom, JN, Tosteson, TD, Lyons, KD, Li, Z, Li, Z, Dragnev, KH, Hegel, MT, Steinhauser, KE, Ahles, TA, and Bakitas, MA. "The role of a palliative care intervention in moderating the relationship between depression and survival among individuals with advanced cancer." Health psychology : official journal of the Division of Health Psychology, American Psychological Association 36, no. 12 (December 2017): 1140-1146.

PMID
29048177
Full Text

Balboni, TA, Fitchett, G, Handzo, GF, Johnson, KS, Koenig, HG, Pargament, KI, Puchalski, CM, Sinclair, S, Taylor, EJ, and Steinhauser, KE. "State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions." Journal of pain and symptom management 54, no. 3 (September 2017): 441-453.

PMID
28734881
Full Text

Steinhauser, KE, Fitchett, G, Handzo, GF, Johnson, KS, Koenig, HG, Pargament, KI, Puchalski, CM, Sinclair, S, Taylor, EJ, and Balboni, TA. "State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes." Journal of pain and symptom management 54, no. 3 (September 2017): 428-440.

PMID
28733252
Full Text

Steinhauser, KE, and Balboni, TA. "State of the Science of Spirituality and Palliative Care Research: Research Landscape and Future Directions." Journal of pain and symptom management 54, no. 3 (September 2017): 426-427.

PMID
28733253
Full Text

Rogers, JG, Patel, CB, Mentz, RJ, Granger, BB, Steinhauser, KE, Fiuzat, M, Adams, PA, Speck, A, Johnson, KS, Krishnamoorthy, A, Yang, H, Anstrom, KJ, Dodson, GC, Taylor, DH, Kirchner, JL, Mark, DB, O'Connor, CM, and Tulsky, JA. "Palliative Care in Heart Failure: The PAL-HF Randomized, Controlled Clinical Trial." Journal of the American College of Cardiology 70, no. 3 (July 2017): 331-341.

PMID
28705314
Full Text

Back, AL, Steinhauser, KE, Kamal, AH, and Jackson, VA. "Why Burnout Is So Hard to Fix." Journal of Oncology Practice 13, no. 6 (June 2017): 348-351.

PMID
28493762
Full Text

Pages