Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Associate Research Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee.  She has conducted cross-sectional and longitudinal observational and interventional, and qualitative and quantitative studies in pursuit of improve understanding of factors that influence quality of life and how they may be addressed in care.  For example, Dr. Steinhauser was Project Director and Co- Investigator of an NIH five-year study, “Trajectories of Serious Illness: Patients and Caregivers,” Principal Investigator of studies to develop measures of quality of life for patients (the QUAL-E ) and families (the QUAL-E fam) in palliative care settings and Principal Investigator of a VA and NIH randomized controlled trials examining the impact of a psychosocial intervention symptoms and quality of life in patients with advanced life limiting illness among (called OUTLOOK).  She is Principal Investigator of an RCT of a caregiver version of the intervention, called Caregiver Outlook, for families of veterans with life-limiting illness.  She piloted tested a chaplains-delivered version of Caregiver Outlook to families of those with cancer and ALS. She conducts work with the VA Mental Health and Chaplaincy program focused on veteran spirituality and health and recently co-led a state of the science conference on spirituality and palliative care research.  Dr. Steinhauser is a member of the scientific review committee for the National Center for Palliative Care Research.  She is the recipient of the American Association of Hospice and Palliative Medicine’s 2015 Award for Scientific Excellence. She is the Director of Duke’s Residency Professional Development Coaching Program and Associate Director of Research for Palliative Care.



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Boucher, NA, Steinhauser, KE, and Johnson, KS. "Older, Seriously Ill Veterans' Views on the Role of Religion and Spirituality in Health-Care Delivery." The American Journal of Hospice & Palliative Care 35, no. 7 (July 2018): 921-928.

PMID
29607653
Full Text

Bonsignore, L, Bloom, N, Steinhauser, K, Nichols, R, Allen, T, Twaddle, M, and Bull, J. "Evaluating the Feasibility and Acceptability of a Telehealth Program in a Rural Palliative Care Population: TapCloud for Palliative Care." Journal of Pain and Symptom Management 56, no. 1 (July 2018): 7-14.

Full Text

LeBlanc, TW, Bloom, N, Wolf, SP, Lowman, SG, Pollak, KI, Steinhauser, KE, Ariely, D, and Tulsky, JA. "Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists." Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer 26, no. 4 (April 2018): 1197-1205.

PMID
29101469
Full Text

Prescott, AT, Hull, JG, Dionne-Odom, JN, Tosteson, TD, Lyons, KD, Li, Z, Li, Z, Dragnev, KH, Hegel, MT, Steinhauser, KE, Ahles, TA, and Bakitas, MA. "The role of a palliative care intervention in moderating the relationship between depression and survival among individuals with advanced cancer." Health Psychology : Official Journal of the Division of Health Psychology, American Psychological Association 36, no. 12 (December 2017): 1140-1146.

PMID
29048177
Full Text

LeBlanc, TW, Fish, LJ, Bloom, CT, El-Jawahri, A, Davis, DM, Locke, SC, Steinhauser, KE, and Pollak, KI. "Patient experiences of acute myeloid leukemia: A qualitative study about diagnosis, illness understanding, and treatment decision-making." December 2017.

PMID
27862591
Full Text

Steinhauser, KE, Alexander, S, Olsen, MK, Stechuchak, KM, Zervakis, J, Ammarell, N, Byock, I, and Tulsky, JA. "Addressing Patient Emotional and Existential Needs During Serious Illness: Results of the Outlook Randomized Controlled Trial." Journal of pain and symptom management 54, no. 6 (December 2017): 898-908.

PMID
28803082
Full Text

Balboni, TA, Fitchett, G, Handzo, GF, Johnson, KS, Koenig, HG, Pargament, KI, Puchalski, CM, Sinclair, S, Taylor, EJ, and Steinhauser, KE. "State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions." Journal of pain and symptom management 54, no. 3 (September 2017): 441-453.

PMID
28734881
Full Text

Steinhauser, KE, Fitchett, G, Handzo, GF, Johnson, KS, Koenig, HG, Pargament, KI, Puchalski, CM, Sinclair, S, Taylor, EJ, and Balboni, TA. "State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes." Journal of pain and symptom management 54, no. 3 (September 2017): 428-440.

PMID
28733252
Full Text

Steinhauser, KE, and Balboni, TA. "State of the Science of Spirituality and Palliative Care Research: Research Landscape and Future Directions." Journal of pain and symptom management 54, no. 3 (September 2017): 426-427.

PMID
28733253
Full Text

Bakitas, M, Dionne-Odom, JN, Pamboukian, SV, Tallaj, J, Kvale, E, Swetz, KM, Frost, J, Wells, R, Azuero, A, Keebler, K, Akyar, I, Ejem, D, Steinhauser, K, Smith, T, Durant, R, and Kono, AT. "Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial." Bmc Palliative Care 16, no. 1 (August 31, 2017): 45-null.

PMID
28859648
Full Text

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