Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 200 Morris Street, Durham, NC 27705
Phone (919) 668-2148
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee. 

Karen Steinhauser, PhD, is Professor, Departments of Population Health Sciences and Medicine, Duke University Medical Center and Senior Fellow with the Duke University Center for Aging and Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham. Her research is dedicated to improving patient and family psychosocial and spiritual care, in serious illness. She has developed measurement tools to assess patient and family quality of life as well as psychosocial interventions to improve the experience of serious illness for patients and those who care for them. Dr. Steinhauser's research has used qualitative and qualitative methods, observational, trial and implementation research.  Her latest work includes: developing a measure to assess the spiritual needs in palliative care, and addressing clinician resilience in palliative care. She serves as Associate Chief of Research for Duke Palliative Care, Director of the Duke Residency Professional Development Coaching program and Vice Chair of Faculty Development for Population Health Sciences. She has been a long-term member of AAHPM, having served on the research committee and being the 2015 Awardee for Excellence in Scientific Research in Palliative Care. She is the Director of Duke’s Residency Professional Development Coaching Program and Vice Chair for Faculty Development, Department of Population Health Sciences



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Steinhauser, Karen E., Elizabeth C. Clipp, Hayden B. Bosworth, Maya McNeilly, Nicholas A. Christakis, Corrine I. Voils, and James A. Tulsky. “Measuring quality of life at the end of life: validation of the QUAL-E.” Palliat Support Care 2, no. 1 (March 2004): 3–14. https://doi.org/10.1017/s1478951504040027.

PMID
16594230
Full Text

Bosworth, H. B., K. E. Steinhauser, M. Orr, J. H. Lindquist, S. C. Grambow, and E. Z. Oddone. “Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors.” Aging Ment Health 8, no. 1 (January 2004): 83–91. https://doi.org/10.1080/13607860310001613374.

PMID
14690872
Full Text

Steinhauser, Karen E., Hayden B. Bosworth, Elizabeth C. Clipp, Maya McNeilly, Nicholas A. Christakis, Joanna Parker, and James A. Tulsky. “Initial assessment of a new instrument to measure quality of life at the end of life.” J Palliat Med 5, no. 6 (December 2002): 829–41. https://doi.org/10.1089/10966210260499014.

PMID
12685529
Full Text

Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, S. Grambow, J. Parker, and J. A. Tulsky. “Preparing for the end of life: Preferences of patients, families, physicians, and other care providers.” Gerontologist 41 (October 1, 2001): 299–300.

Scholars@Duke

Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, S. Grambow, J. Parker, and J. A. Tulsky. “Preparing for the end of life: preferences of patients, families, physicians, and other care providers.” J Pain Symptom Manage 22, no. 3 (September 2001): 727–37. https://doi.org/10.1016/s0885-3924(01)00334-7.

PMID
11532586
Full Text

Steinhauser, K. E., N. A. Christakis, E. C. Clipp, M. McNeilly, L. McIntyre, and J. A. Tulsky. “Factors considered important at the end of life by patients, family, physicians, and other care providers.” Jama 284, no. 19 (November 15, 2000): 2476–82. https://doi.org/10.1001/jama.284.19.2476.

PMID
11074777
Full Text

Steinhauser, K. E., E. C. Clipp, N. Christakis, M. McNeilly, L. McIntyre, and J. A. Tulsky. “In Search of a Good Death: Attitudes of Patients, Family Members and Health Care Professionals.” Journal of General Internal Medicine 15, no. s2 (October 2000): 5–5. https://doi.org/10.1046/j.1525-1497.2000.15200-19.x.

Full Text

Steinhauser, K. E., E. C. Clipp, M. McNeilly, N. A. Christakis, L. M. McIntyre, and J. A. Tulsky. “In search of a good death: observations of patients, families, and providers.” Annals of Internal Medicine 132, no. 10 (May 2000): 825–32. https://doi.org/10.7326/0003-4819-132-10-200005160-00011.

PMID
10819707
Full Text

Pages