Karen E. Steinhauser, PhD

Professor in Population Health Sciences
Professor in Medicine
Member of the Duke Cancer Institute
Campus mail 152 VA Med Ctr, Durham, NC 27708
Phone (919) 286-0411
Email address karen.steinhauser@duke.edu

Dr. Steinhauser's primary interests are end-of-life care, medical sociology and patient-provider relationships. Specifically, she investigates the composition and measurement of the quality of life for patients and their families at the end of life. Dr. Steinhauser is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham; Professor, Department of Population Health Science and Medicine; Senior Fellow with the Duke University Center for Aging; Associate Chief for Research, Duke Palliative Care, and Director, Duke Residency Professional Development Coaching Program. 

Karen E. Steinhauser, PhD is a social scientist dedicated to improving quality of life of patients, families, and providers during serious illness.  She is a Health Scientist with the Center for Health Services Research in Primary Care, VA Medical Center, Durham and Associate Research Professor, Department of Medicine, Duke University Medical Center, Senior Fellow with the Duke University Center for Aging, and a former VA Career Development Awardee.  She has conducted cross-sectional and longitudinal observational and interventional, and qualitative and quantitative studies in pursuit of improve understanding of factors that influence quality of life and how they may be addressed in care.  For example, Dr. Steinhauser was Project Director and Co- Investigator of an NIH five-year study, “Trajectories of Serious Illness: Patients and Caregivers,” Principal Investigator of studies to develop measures of quality of life for patients (the QUAL-E ) and families (the QUAL-E fam) in palliative care settings and Principal Investigator of a VA and NIH randomized controlled trials examining the impact of a psychosocial intervention symptoms and quality of life in patients with advanced life limiting illness among (called OUTLOOK).  She is Principal Investigator of an RCT of a caregiver version of the intervention, called Caregiver Outlook, for families of veterans with life-limiting illness.  She piloted tested a chaplains-delivered version of Caregiver Outlook to families of those with cancer and ALS. She conducts work with the VA Mental Health and Chaplaincy program focused on veteran spirituality and health and recently co-led a state of the science conference on spirituality and palliative care research.  Dr. Steinhauser is a member of the scientific review committee for the National Center for Palliative Care Research.  She is the recipient of the American Association of Hospice and Palliative Medicine’s 2015 Award for Scientific Excellence. She is the Director of Duke’s Residency Professional Development Coaching Program and Associate Director of Research for Palliative Care.



Area of expertise: Palliative Care, Qualitative Research

Education and Training

  • Ph.D., Duke University, 1996

Publications

Taylor, Donald H., Jan Ostermann, Courtney H. Van Houtven, James A. Tulsky, and Karen Steinhauser. “What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program?.” Soc Sci Med 65, no. 7 (October 2007): 1466–78. https://doi.org/10.1016/j.socscimed.2007.05.028.

PMID
17600605
Full Text

Munn, Jean C., Sheryl Zimmerman, Laura C. Hanson, Christianna S. Williams, Philip D. Sloane, Elizabeth C. Clipp, James A. Tulsky, and Karen E. Steinhauser. “Measuring the quality of dying in long-term care..” J Am Geriatr Soc 55, no. 9 (September 2007): 1371–79.

PMID
17915342
Scholars@Duke

Steinhauser, Karen E., Elizabeth C. Clipp, Judith C. Hays, Maren Olsen, Robert Arnold, Nicholas A. Christakis, Jennifer Hoff Lindquist, and James A. Tulsky. “Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research..” Palliat Med 20, no. 8 (December 2006): 745–54. https://doi.org/10.1177/0269216306073112.

PMID
17148529
Full Text

Lyerly, Anne Drapkin, Karen Steinhauser, Emily Namey, James A. Tulsky, Robert Cook-Deegan, Jeremy Sugarman, David Walmer, Ruth Faden, and Edward Wallach. “Factors that affect infertility patients' decisions about disposition of frozen embryos..” Fertil Steril 85, no. 6 (June 2006): 1623–30. https://doi.org/10.1016/j.fertnstert.2005.11.056.

PMID
16678178
Full Text

Evans, Wendy G., Toni M. Cutson, Karen E. Steinhauser, and James A. Tulsky. “Is there no place like home? Caregivers recall reasons for and experience upon transfer from home hospice to inpatient facilities..” J Palliat Med 9, no. 1 (February 2006): 100–110. https://doi.org/10.1089/jpm.2006.9.100.

PMID
16430350
Full Text

Steinhauser, Karen E., Corrine I. Voils, Elizabeth C. Clipp, Hayden B. Bosworth, Nicholas A. Christakis, and James A. Tulsky. “"Are you at peace?": one item to probe spiritual concerns at the end of life..” Arch Intern Med 166, no. 1 (January 9, 2006): 101–5. https://doi.org/10.1001/archinte.166.1.101.

PMID
16401817
Full Text

Steinhauser, K. E. “Measuring end-of-life care outcomes prospectively.” In Journal of Palliative Medicine, Vol. 8, 2005.

Scholars@Duke

Steinhauser, Karen E., Elizabeth C. Clipp, Hayden B. Bosworth, Maya McNeilly, Nicholas A. Christakis, Corrine I. Voils, and James A. Tulsky. “Measuring quality of life at the end of life: validation of the QUAL-E..” Palliat Support Care 2, no. 1 (March 2004): 3–14.

PMID
16594230
Scholars@Duke

Bosworth, H. B., K. E. Steinhauser, M. Orr, J. H. Lindquist, S. C. Grambow, and E. Z. Oddone. “Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors..” Aging Ment Health 8, no. 1 (January 2004): 83–91. https://doi.org/10.1080/13607860310001613374.

PMID
14690872
Full Text

Pages