Clinical Research Registries

Researchers in the Duke Division of Rheumatology and Immunology have been instrumental in creating and maintaining a number of registries that collect clinical data on patients with rheumatologic disease.

Our researchers also contribute to national registries and collaborate with other researchers to collect and study the most comprehensive data on this population.

This data is used to develop and test new treatments and therapies for autoimmune disease.

Duke Registries

Duke Lupus Registry
This registry allows doctors to follow the disease activity and medication usage of patients with lupus who are seen in the Duke Lupus Clinic.

Duke Autoimmunity in Pregnancy Registry (DAP Registry)
This registry collects data about women who are pregnant and have rheumatologic disease. Data is collected from women who are seen by physician-researchers Megan Clowse, MD, MPH, and Lisa Cricione-Schreiber, MD, at Duke and Daniel Wallace, MD, at Cedars Sinai Hospital in Los Angeles.

National Registries

National Data Bank for Rheumatic Diseases (NDB)
Our researchers collect data in collaboration with researchers at the NDB, Stanford, Harvard, and the Organization of Teratology Information Specialists (OTIS) Registry. Currently our researchers are using the information from this data bank in a cross-sectional study of reproductive health in women with rheumatoid arthritis, system lupus erythematosus, or osteoarthritis.

Lupus Clinical Trial Consortium (LCTC)
Duke is a participating site for this large, prospective study of patients with lupus. The LCTC funds and connects researchers from multiple institutions to promote collaboration and excellence in lupus clinical trials.

Vasculitis Clinical Research Consortium (VCRC)
The VCRC allows patients with vasculitis to enroll in a contact registry where they can be contacted about clinical research opportunities. Duke is participating in a cross-sectional study of reproductive health in men and women with vasculitis. This clinical study is funded by the Vasculitis Foundation in collaboration with the Vasculitis Clinical Research Consortium.