We’ve gathered trusted resources to support patients, families, and healthcare providers in learning more about sickle cell disease (SCD) and staying informed about care options.
Duke Sickle Cell Resources
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Duke Emergency Department Sickle Cell Resources – a website designed as an educational resource to support clinicians in their care of children and adults living with SCD
National and Expert Resources
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Sickle Cell Information Center – resources for patients, families, and providers
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American Society of Hematology (ASH)– educational tools, research updates, and patient-friendly information
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Centers for Disease Control and Prevention (CDC) – facts, data, and resources for patients and caregivers
MyChart & Health Tracking
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Duke MyChart – message providers, track appointments, and access how-to videos
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Free apps like Apple Health can also support medication reminders and symptom tracking
In the News
From NPR: "Sickle Cell Patients Endure Discrimination, Poor Care And Shortened Lives"
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